Patient Resources

At VisionBound Foundation, we proudly support the global Usher Syndrome Data Collection Program — an initiative designed to make patient data accessible to researchers working to unlock new treatments and technologies.

By contributing to this effort, we aim to accelerate the development of life-changing therapies and ensure that every individual living with Usher syndrome is recognized and represented. This work aligns with our commitment to advancing medical innovation and empowering families affected by inherited blindness.