Our Team

A world-class team of scientists, clinicians, and advisors united to accelerate cures for Usher Syndrome Type 2A.

Casey Eye Institute

Mark Pennesi, M.D., Ph.D.

Bio
Kathleen R. Chirco, Ph.D.

Kathleen R. Chirco, Ph.D.

Bio
La Jolla Labs
Tamar Grossman, Ph.D.

Tamar Grossman, Ph.D.

Bio
Jeff Milton

Jeff Milton

Bio
Nome

Stevie Ringel

Our Fiscal Sponsor

Rare Village Foundation

Rare Village Foundation

VisionBound Foundation operates under the fiscal sponsorship of the Rare Village Foundation, a 501(c)(3) nonprofit organization dedicated to supporting families navigating rare diseases. Founded by two rare disease parents, Rare Village empowers families through education, connection, and advocacy — helping accelerate research and provide hope for children affected by rare and terminal conditions.